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Project Title Evaluating Patient Reported Outcomes in Breast Cancer
Researcher Dunya Atisha, MD, and Amy Abernethy, MD, at Duke University Medical Center, Durham, NC
Study Summary The overall goal of this study is to learn about the impact of breast-conserving surgery/lumpectomy, mastectomy, and mastectomy with breast reconstruction on a woman’s quality of life, general health care experience, and satisfaction with care and outcomes.
Who Can Participate? You can sign up for the Evaluating Patient Reported Outcomes in Breast Cancer study if you meet ALL of these MAIN criteria:
• You are a woman over the age of 18.
• You have had a previous diagnosis OR a current diagnosis of breast cancer of any stage. This includes those who have had a previous OR current diagnosis of LCIS, DCIS, or Stage IV metastatic breast cancer.
• You had surgery to treat your breast cancer
• You have access to the Internet and are willing to complete an on-line survey
• You live in the United States
What Does Participation Involve? If you’re interested in this study, you will be asked 5 questions to see if you meet the criteria to sign up for the study. If you are eligible to participate, you will receive a link to the study. If you sign up for the Evaluating Patient Reported Outcomes in Breast Cancer study, you will be contacted via email by the research team with instructions on completing the on-line screening form and surveys.
You will be asked to provide basic demographic information (such as age and ethnicity) and answer questions about your breast cancer diagnosis and treatment, overall health, problems or complaints related to breast cancer and its treatment, and the impact of cancer on your life. The full survey will take approximately 30-45 minutes to complete. You can complete the survey in more than one sitting; you can take breaks as needed.
Where? Anywhere in the United States – this is an on-line study which you will be able to complete either on a desktop, laptop, or iPad-like technology