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Current Projects

 
  
 
Looking for a specific type of study? Finding the right fit is simple:
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The following projects are currently open and enrolling volunteers. These studies were evaluated and approved by the research team at Dr. Susan Love Research Foundation and members of our external Scientific Advisory Committee, comprised of researchers, clinicians, and advocates.

If you would like to learn about the studies we recruited for in the past, please click here.

  
Researcher: Betina Yanez, PhD, Principal Investigator; Feinberg School of Medicine Northwestern University; 633 North St. Clair; Chicago, IL 60611; Phone: (312) 503-2866; Email: myjourney@northwestern.edu; David E Victorson, PhD; Feinberg School of Medicine Northwestern University, Chicago, IL
Broadcast date: December 4, 2019

Hormone therapies are routinely used to treat hormone-sensitive (ER+ and/or PR+) breast cancer. Researchers have developed online health programs designed to help women with early-stage breast cancer learn more about hormone therapy and how to enhance wellbeing.

 

The purpose of the My Journey Study is to compare two 8-week online health programs that have been developed to help women with early-stage breast cancer starting hormone therapy. Both programs include interactive health resources and videos. The researchers are interested in learning what aspects of these programs patients find beneficial.

Researcher: Maurade Gormley, MSN, Gail D’Eramo Melkus, EdD, ANP, FAAN, and Allison Vorderstrasse, APRN, DNSc, MSN, RN, New York University College of Nursing, New York, NY; Bradley E. Aouizerat, PhD, New York University College of Dentistry, New York, NY; Tish Knobf, PhD, RN, AOCN, FAAN, Yale University School of Nursing, New Haven, CT; and Marilyn Hammer, PhD, DC, RN, Mount Sinai Hospital Department of Nursing, New York, NY
Broadcast date: November 22, 2019

The purpose of this research is to learn how the results of your Oncotype Dx® test results affect your health-related quality of life; your feelings of distress, anxiety, depression, and fear; and your perceived risk of recurrence. The researchers will use these findings to develop a personalized symptom management program to help improve the quality of life of breast cancer survivors.

Researcher: Katharine Yao, MD, NorthShore University HealthSystem, Evanston, IL Phone: (847) 570-2290; David Victorson, PhD, Northwestern University, Chicago, IL, Phone: (847) 467-3060; Deanna Attai, MD, University of California, Los Angeles, Los Angeles, CA, Phone: (818) 333-2555
Broadcast date: November 12, 2019

The purpose of this study is to learn how a woman’s beliefs and values influence her decision to select a specific type of breast cancer surgery. The researchers will use what they learn to create a decision aid that doctors can use to talk with their patients about breast surgery options.

Researcher: Susan Neuhausen, PhD, City of Hope, Duarte, CA and Elad Ziv, M.D., University of California, San Francisco, San Francisco, CA
Broadcast date: October 17, 2019

The goal of this study is to find differences in genes that may affect breast cancer risk in Latinas.  Understanding these differences could help in developing prevention strategies, as well as more targeted treatment plans in the future.  The research team is enrolling Latinas who have had invasive breast cancer at any stage diagnosed before the age of 71. 

 

If you enroll in this study, you will NOT receive any individual genetic test results. However, if there are any findings that could be of clinical importance, we will send a letter to you and to your doctor so that you can follow-up with your doctor.   Because these results are research results, the finding will need to be confirmed by clinical testing. 

Researcher: Nishant Ganesh Kumar, MD, Adeyiza Momoh, MD, Nicholas Berlin, MD, Reshma Jagsi, MD, DPhil, and Sarah Hawley, PhD, MPH, University of Michigan, Ann Arbor
Broadcast date: October 2, 2019

The purpose of this study is to understand the financial experiences of women with breast cancer who choose breast reconstruction after a mastectomy. A research team from the University of Michigan has developed an anonymous online survey that will help them learn more about patient-provider communication, how breast cancer patients make medical decisions related to breast reconstruction, and the impact their reconstruction decision has on their financial well-being.

Researcher: Maurade Gormley, MSN, Gail D’Eramo Melkus, EdD, ANP, FAAN, and Allison Vorderstrasse, APRN, DNSc, MSN, RN, New York University College of Nursing, New York, NY; Bradley E. Aouizerat, PhD, New York University College of Dentistry, New York, NY; Tish Knobf, PhD, RN, AOCN, FAAN, Yale University School of Nursing, New Haven, CT; and Marilyn Hammer, PhD, DC, RN, Mount Sinai Hospital Department of Nursing, New York, NY
Broadcast date: August 7, 2019

The purpose of this research is to learn how the results of your Oncotype Dx® test results affect your health-related quality of life; your feelings of distress, anxiety, depression, and fear; and your perceived risk of recurrence. The researchers will use these findings to develop a personalized symptom management program to help improve the quality of life of breast cancer survivors.

Researcher: James Root, PhD, Memorial Sloan Kettering Cancer Center, New York, NY
Broadcast date: May 15, 2019

The purpose of this study is to evaluate a brief, game-like set of tests developed to measure changes in cognitive (mental) function. The test, called the Cogsuite Assessment, is designed to evaluate a person’s ability to organize and plan, initiate and stay focused on certain tasks, regulate their emotions, and process and interpret visual information. The tests also evaluate memory, motor function, and processing speed. This study is expected to help researchers design a test doctors can use to identify cognitive impairments in people who have been treated for cancer.

The research team needs both women who have been diagnosed with stage 0 (DCIS) to stage III breast cancer and women who have not had cancer to participate so the researchers can compare test results between the two groups.

Researcher: Cathy Skinner, MA, at Thrivors Inc., Doug Yee, MD, at University of Minnesota, Kerri Winters-Stone, PhD, at Oregon Health & Science University
Broadcast date: March 20, 2019

Breast cancer treatments that block estrogen can cause bone loss, increasing the risk of a bone break or fracture. Current guidelines recommend that breast cancer survivors make lifestyle changes and increase their physical activity to help reduce bone loss. But they typically do not provide clear, specific instructions for breast cancer survivors to follow.

The purpose of this study is to develop and test a safe, effective, and individualized exercise, nutrition, and mindfulness program that can help survivors of early-stage breast cancer on an anti-estrogen therapy reduce bone loss. This new online program, called Thrivors™, provides instructions for home- or gym-based exercises, resources for nutrition and mindfulness, and educational content on the benefits of a healthy lifestyle after a cancer diagnosis. This study will compare participants' experiences using two different versions of the Thrivors™ program: ThrivorsBasic™ and Thrivors+BoneHealth(BH)™.

Researcher: Andrea Pusic, MD, Brigham and Women’s Hospital, Harvard Medical School, Boston, MA Anne Klassen, DPhil, McMaster University, Hamilton, ON
Broadcast date: March 6, 2019

The BREAST-Q is a questionnaire used around the world in patient care and research. The BREAST-Q measures quality of life and breast satisfaction. In this study, researchers are testing 5 new scales relevant to all breast cancer patients and 7 new scales for women who develop arm lymphedema. These new scales will make it possible for researchers and health care providers to better understand the impact of breast cancer and lymphedema on quality of life.

 

The research team began recruitment for this study in July 2018 and is expanding the study to include all women with any stage of breast cancer, with or without breast reconstruction.

Researcher: Shanaz Dairkee, PhD, California Pacific Medical Center Research Institute, San Francisco, CA, Polly Marshall, Esq., Breast Cancer Over Time, San Francisco, CA, William Goodson III, MD, California Pacific Medical Center Research Institute, San Francisco, CA
Broadcast date: February 11, 2019

Manufactured chemicals are found in many consumer products. Some of these chemicals, such as phthalates and parabens, act as xenoestrogens. Xenoestrogens are chemicals that mimic the effect of the natural hormone estrogen. Laboratory studies have shown xenoestrogens can cause pre-cancerous changes in normal human breast cells. It is not known whether they increase breast cancer risk in women.

The purpose of this study is to compare the effects of over-the-counter personal care products that contain xenoestrogens with personal care products that are xenoestrogen-free on premenopausal women’s normal breast cells. Participants will use paraben- and phthalate-free personal care products for one month to help researchers evaluate the impact of chemical exposure on breast cells. Clinical studies have shown that when study volunteers decrease their exposure to xenoestrogens, levels in blood or urine decrease as well. This study builds on an earlier study that recruited participants in 2017 through the Army of Women.

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