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Current Projects

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The following projects are currently open and enrolling volunteers. These studies were evaluated and approved by the research team at Dr. Susan Love Research Foundation and members of our external Scientific Advisory Committee, comprised of researchers, clinicians, and advocates.

If you would like to learn about the studies we recruited for in the past, please click here.

Researcher: Maurade Gormley, MSN, Gail D’Eramo Melkus, EdD, ANP, FAAN, and Allison Vorderstrasse, APRN, DNSc, MSN, RN, New York University College of Nursing, New York, NY; Bradley E. Aouizerat, PhD, New York University College of Dentistry, New York, NY; Tish Knobf, PhD, RN, AOCN, FAAN, Yale University School of Nursing, New Haven, CT; and Marilyn Hammer, PhD, DC, RN, Mount Sinai Hospital Department of Nursing, New York, NY
Broadcast date: August 7, 2019

The purpose of this research is to learn how the results of your Oncotype Dx® test results affect your health-related quality of life; your feelings of distress, anxiety, depression, and fear; and your perceived risk of recurrence. The researchers will use these findings to develop a personalized symptom management program to help improve the quality of life of breast cancer survivors.

Researcher: James Root, PhD, Memorial Sloan Kettering Cancer Center, New York, NY
Broadcast date: May 15, 2019

The purpose of this study is to evaluate a brief, game-like set of tests developed to measure changes in cognitive (mental) function. The test, called the Cogsuite Assessment, is designed to evaluate a person’s ability to organize and plan, initiate and stay focused on certain tasks, regulate their emotions, and process and interpret visual information. The tests also evaluate memory, motor function, and processing speed. This study is expected to help researchers design a test doctors can use to identify cognitive impairments in people who have been treated for cancer.

The research team needs both women who have been diagnosed with stage 0 (DCIS) to stage III breast cancer and women who have not had cancer to participate so the researchers can compare test results between the two groups.

Researcher: Cathy Skinner, MA, at Thrivors Inc., Doug Yee, MD, at University of Minnesota, Kerri Winters-Stone, PhD, at Oregon Health & Science University
Broadcast date: March 20, 2019

Breast cancer treatments that block estrogen can cause bone loss, increasing the risk of a bone break or fracture. Current guidelines recommend that breast cancer survivors make lifestyle changes and increase their physical activity to help reduce bone loss. But they typically do not provide clear, specific instructions for breast cancer survivors to follow.

The purpose of this study is to develop and test a safe, effective, and individualized exercise, nutrition, and mindfulness program that can help survivors of early-stage breast cancer on an anti-estrogen therapy reduce bone loss. This new online program, called Thrivors™, provides instructions for home- or gym-based exercises, resources for nutrition and mindfulness, and educational content on the benefits of a healthy lifestyle after a cancer diagnosis. This study will compare participants' experiences using two different versions of the Thrivors™ program: ThrivorsBasic™ and Thrivors+BoneHealth(BH)™.

Researcher: Andrea Pusic, MD, Brigham and Women’s Hospital, Harvard Medical School, Boston, MA, Anne Klassen, DPhil, McMaster University, Hamilton, ON, and Lily Mundy, MD, Duke University, Durham, NC
Broadcast date: March 6, 2019

The BREAST-Q is a questionnaire used around the world to collect information from women about their quality of life and breast satisfaction after breast cancer surgery. In this study, researchers are testing 8 new BREAST-Q scales. These new scales will make it possible for researchers to study recovery from surgery, nipple appearance, and return of breast sensation.

Researcher: Shanaz Dairkee, PhD, California Pacific Medical Center Research Institute, San Francisco, CA, Polly Marshall, Esq., Breast Cancer Over Time, San Francisco, CA, William Goodson III, MD, California Pacific Medical Center Research Institute, San Francisco, CA
Broadcast date: February 11, 2019

Manufactured chemicals are found in many consumer products. Some of these chemicals, such as phthalates and parabens, act as xenoestrogens. Xenoestrogens are chemicals that mimic the effect of the natural hormone estrogen. Laboratory studies have shown xenoestrogens can cause pre-cancerous changes in normal human breast cells. It is not known whether they increase breast cancer risk in women.

The purpose of this study is to compare the effects of over-the-counter personal care products that contain xenoestrogens with personal care products that are xenoestrogen-free on premenopausal women’s normal breast cells. Participants will use paraben- and phthalate-free personal care products for one month to help researchers evaluate the impact of chemical exposure on breast cells. Clinical studies have shown that when study volunteers decrease their exposure to xenoestrogens, levels in blood or urine decrease as well. This study builds on an earlier study that recruited participants in 2017 through the Army of Women.

Researcher: Christine Miaskowski, RN, PhD, University of California, San Francisco, and her colleagues in the Department of Medicine
Broadcast date: November 27, 2018

The purpose of this study is to evaluate the long-term effects of the chemotherapy drugs used to treat cancer on the ears (hearing and tinnitus) and hands and feet (neuropathy). To better understand the impact chemotherapy has on these aspects of quality of life, a research team at the University of California, San Francisco, is seeking women and men who have had a diagnosis of stage I – IV breast, gynecological, gastrointestinal, or lung cancer and have received chemotherapy to participate in a one-visit study. 

Researcher: Tim Ahles, PhD, and James Root, PhD, at Memorial Sloan Kettering Cancer Center
Broadcast date: November 5, 2018

Breast cancer treatments may have an impact on how the brain processes information and emotions as well as on a person’s attention span and behavior. To better understand and measure these changes, researchers at Memorial Sloan Kettering Cancer Center developed a new thinking test called the Sensory-Attention-Executive (SAE) Battery. The research team needs women who have not had cancer to participate in a study that will evaluate whether these tests accurately capture how the brain may change over time.

Researcher: Chad Rethorst, PhD, and Madhukar Trivedi, MD, University of Texas Southwestern Medical Center
Broadcast date: October 5, 2018

Regular physical activity is beneficial for women who have been diagnosed with breast cancer, potentially reducing the likelihood of recurrence. Studies have also found exercise can help decrease fatigue, improve mood and cognition, and increase sleep quality. However, many women find it difficult to begin or maintain a regular physical activity program.

A research team from UT Southwestern Medical Center is investigating a new way to help breast cancer survivors increase their physical activity — a six-month education program, available in two Texas locations: Dallas (UT Southwestern) and Fort Worth (Moncrief Cancer Institute).

Researcher: Lorraine T. Dean, ScD, and Tonia Poteat, PhD, of Johns Hopkins Bloomberg School of Public Health, Baltimore, MD
Broadcast date: July 13, 2018

A research team at Johns Hopkins wants to learn how to improve access to follow-up care for women who get an abnormal breast cancer screening result. To learn what care women do or don’t get, the research team is having about 500 women who received abnormal results from a mammogram, breast MRI, or clinical breast exam or a diagnosis of breast cancer complete a 30-minute survey about their healthcare experiences.

The research team recruited for this study in July 2018 and enrolled more than 200 women. Most of the women who signed up to participate were White and heterosexual. To better assess healthcare experiences across populations, the research team is now looking for participants from other racial / ethnic groups and sexual orientations.

Researcher: Hinaben Panchal, MD, MPH, and Evan Matros, MD, MMSc, MPH at Memorial Sloan Kettering Cancer Center, New York, NY
Broadcast date: June 22, 2018

All breast cancer patients have many decisions to make as they decide which breast cancer surgery, and other treatments, are right for them. These decisions may be influenced by input from family, friends, and doctors – but what is important to them might not be what matters most to the patients themselves. The purpose of this study is to better understand which factors women and men find most important as they consider different surgical treatment options. The researchers completed enrollment of participants without a breast cancer diagnosis and now need women who had a single or double mastectomy after a breast cancer diagnosis. The researchers will use what they learn to improve how health care providers approach shared decision-making with their breast cancer patients.