In the United States, over 2 million women live with a history of breast cancer. The re-entry transition from cancer patient to survivor is an understudied and challenging period. Using a theory-driven conceptual framework, Project 3 of this Cancer Information Service Research Consortium (CISRC) proposal involves development and testing of interventions to promote informed re-entry to life after breast cancer treatment. To test the efficacy of the intervention, breast cancer callers to the CIS will be enrolled, and depending on computer access, randomized to the 3-group design (n = 1,080 at baseline) or the 2-group design (n = 150 at baseline), and followed at 2, 6, and 12 months post-baseline. Project 3 is unique in that it examines a state-of-the-science software program and proactive CIS-initiated telephone callback, thus addressing the primary service mission of the CIS. Contingent upon findings, the goal of the CISRC is to prepare the intervention for dissemination within the CIS, as well as other service programs nationwide.
This study at the University of California, Los Angeles, is investigating the best way to provide post-treatment education materials about life after breast cancer: via the mail or with a multi-media education tool that can be viewed over the Internet or on a CD-Rom. The researchers were looking to enroll at least 1080 volunteers. The Call to Action for this study was sent to Army of Women members on September 16, 2009. The researchers were able to close enrollment on April 14, 2011, after the Army of Women provided them with 2,579 women who were interested in enrolling in the study.
- Development and utilization of complementary communication channels for treatment decision making and survivorship issues among cancer patients: The CIS Research Consortium Experience
- Cancer patient and survivor research from the cancer information service research consortium: a preview of three large randomized trials and initial lessons learned
- Responding to a significant recruitment challenge within three nationwide psychoeducational trials for cancer patients