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Evaluating Patient Reported Outcomes in Breast Cancer

Dunya Atisha Duke University Medical Center, Durham, NC
Study abstract

Since breast conservation surgery (BCS) with radiation, mastectomy (M), and post-mastectomy breast reconstruction (BR) have similar recurrence rates and survival, evaluating health related quality of life (HRQOL) outcomes and patient satisfaction in women who have had these procedures is necessary to facilitate the surgical decision making process and to maximize short and long-term health of those facing a breast cancer diagnosis. We propose a study of breast cancer survivors enrolled in the Susan Love/Avon Army of Women. We aim to evaluate and compare HRQOL and patient satisfaction in those who had BCS, mastectomy, and BR and to evaluate the effect of time on these outcomes by administering condition specific surveys through a web-based instrument.

Study review

The overall goal of this study at the Duke University Medical Center in Durham, North Carolina, is to learn about the impact breast-conserving surgery/lumpectomy, mastectomy, or mastectomy with breast reconstruction have on a woman's quality of life, general health care experience, and satisfaction with care and outcomes. The research team wanted to enroll as many breast cancer survivors as possible who were interested in participating in their online survey. The Call to Action for this study was sent to Army of Women members on May 24, 2012. The researchers were able to close enrollment on August 21, 2012, after the Army of Women provided them with 9,282 women who were interested in enrolling in the study.

Research Webinar:
A Conversation with Dr. Dunya Atisha

Resulting Publications: