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Understanding Stakeholders' Preferences for Contralateral Prophylactic Mastectomy: A Conjoint Analysis Study

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Hinaben Panchal, MD, MPH, and Evan Matros, MD, MMSc, MPH at Memorial Sloan Kettering Cancer Center, New York, NY

All breast cancer patients have many decisions to make as they decide which breast cancer surgery, and other treatments, are right for them. These decisions may be influenced by input from family, friends, and doctors – but what is important to them might not be what matters most to the patients themselves. The purpose of this study is to better understand which factors women and men find most important as they consider different surgical treatment options. The researchers completed enrollment of participants without a breast cancer diagnosis and now need women who had a single or double mastectomy after a breast cancer diagnosis. The researchers will use what they learn to improve how health care providers approach shared decision-making with their breast cancer patients.

What does participation involve?

The research team at Memorial Sloan Kettering Cancer Center in New York City created a questionnaire that simulates a decision-making process for breast cancer surgery. If you are eligible for this study, you will receive a link to the online questionnaire. You will be asked to answer situational questions, where you learn about and choose between different treatment options. If you have been diagnosed with breast cancer, you will also be asked about your breast cancer, surgery, and how cancer has personally affected you.

Participants are not required to provide any identifying information. The questionnaire should take approximately 10 minutes to complete. You can take breaks while answering the questions and return to where you left off, as long as you use the same computer.

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